Tourettes Syndrome Symposium

T.I.C are holding a 3 day Symposium starting from 10th of June to the 12th, this will be held at the Canham Turner Building, Hull University.

TEACHERS

Tourettes Syndrome affects 1 in 100 school children in the UK with a growing number leaving education to be home schooled

With a greater understanding on how to support a child with TS in the classroom, you will not only gain the tools to help improve the child’s learning experience but also attendance and academic results.

Susan Conners, M.Ed. is an internationally sought-after speaker, teacher, trainer and author of “The Tourette Syndrome/OCD Checklist: A Practical Reference for Educators and Parents” on the education of children with Tourette Syndrome (TS), Obsessive Compulsive Disorder (OCD) and other related neurological disorders. She has presented workshops in 48 of the 50 US states, Canada, Puerto Rico, Spain, Norway, Northern Ireland, and is now coming to Hull.

As well as Susan there will be a talk on sensory integration and the sensory ladder. Other speakers to be confirmed.

Lunch and refreshments will be provided

9:00am – 9:45am Registration

10am start finishing at 3pm

Part funded by 2 Ridings Community Foundation

MEDICAL PROFESSIONALS

We have an exciting opportunity in Hull for those interested in learning more about Tourettes Syndrome and it’s comorbidities. If you are a medical professional working with children or adults who have tic disorders/Tourettes Syndrome, then please book your place and mark it in your calendar.

Speakers include

Dr Santosh Mordekar – a full time NHS Consultant Pediatric Neurologist at Sheffield Children Hospital since 2005. He cares for patients with neurological problems as inpatients on the wards and as outpatients in clinics at the Ryegate Children’s Centre and in combined clinics at Barnsley, Boston, Doncaster and Grimsby. He is the clinical lead for Intrathecal Baclofen Service (ITB), movement disorder and spasticity service for children in the South Yorkshire, North Derbyshire and North Lincolnshire region. He has established multidisciplinary ITB clinics, specialist Pediatric movement disorder clinics and Tourette syndrome clinics in the region.

Dr Seonaid Anderson CPsychol – A chartered research psychologist and freelance neurodiversity consultant with many years’ experience in neurodevelopmental disorders. Previously the research manager at Tourettes Action in the UK and now managing her own business Neuro-diverse.org. She created the Behavioural Therapy for Tics Institute (BTTI) which offers online behavioural therapy training for tics and other events for clinicians and therapists. She contributed to the updated European clinical guidelines for the treatment of Tourette syndrome (TS) and has co-created podcasts and a topic guide on TS for The Association for Child and Adolescent Mental Health (ACAMH) along with writing many publications on the subject of Tourette Syndrome. She is a board member of Belgian Tourette Syndrome Patient Association Iktic/Jetique and a member of the organising committee for Tics and Tourette Around the Globe (TTAG) which is an umbrella organization representing Tic and Tourette Syndrome (TS) advocacy groups across Europe

Dr Melina Malli – the senior research associate at Manchester Metropolitan University will be discussing her recent study on the Stigma of Tourettes Syndrome. Dr Malli will also be presenting a recently published co-authored paper titled “Calling for Caution: ‘Stop That’ Sentiments Threaten Tic Research, Healthcare, and Advocacy Progress”, alongside PhD researcher Daniel Jones.

Daniel Jones – PhD researcher at Nottingham University will be presenting some early findings from his PhD research into the geographies of impulsivity and the embodied experiences of public spaces for adults with a diagnosis of Tourette Syndrome.

Dr Maddie Groom, Associate Professor University of Nottingham and Acting Director of Centre for ADHD and Neurodevelopmental Disorders Across the Lifespan. Will present an overview of research into tics and Tourette Syndrome at the University of Nottingham, including current research investigating the lived experiences of people with tics and their experiences of accessing healthcare. Also being discussed will be the working campaign for better services for people with tic disorders in collaboration with other stakeholders.

Emma McNally, mum of a son with TS and CEO of Tourettes Action will be talking about the struggles her family have faced with accessing medical care and how this led her to start campaigning for change.

Johnny Davidson Mbe and Paul Stevenson will share a message from lived experience.

Registration 13:45pm – 14:15pm FINISHING AT 6PM

PEOPLE LIVING WITH TICS/TOURETTES SYNDROME

Real people, talking about real life!

*Speakers still to be confirmed*

registration 9am-9:45am

Susan Conners, M.Ed. is an internationally sought-after speaker, teacher, trainer and author of “The Tourette Syndrome/OCD Checklist: A Practical Reference for Educators and Parents” on the education of children with Tourette Syndrome (TS), Obsessive Compulsive Disorder (OCD) and other related neurological disorders. She has presented workshops in 48 of the 50 US states, Canada, Puerto Rico, Spain, Norway and Northern Ireland. Susan will be giving a whistle stop tour on TS and education.

Johnny Davidson MBE & Paul Stevenson – adults with TS who are advocates for those living with the condition, travelling the country to speak in schools. Johnny was awarded his MBE for all the work he has done in the world of TS. They have both taken part in many TV documentaries and radio interviews. Both Johnny and Paul will be discussing their lived experiences, focusing on issues affecting adults with TS, rages and coping strategies.

Elaine Smurthwaite and Sarah McClory from Tourettes Scotland, will be coming to discuss sensory integration, the impact sensory difficulties can have on a person with TS and the sensory ladder.

Bea Wood – Miss Transgender UK (2017) will be talking about living with ADHD and adult onset TS.

Alongside the main speakers, local TIC members will be sharing their experiences.

Lunch and refreshments will be provided.

We realise that the talks on Saturday may become too much for the children to sit through, and with this in mind have managed to set up a couple of workshops for the children to run alongside the talks.

One of these will be a photography workshop, an opportunity to learn a creative way to express themselves whilst also showing that hobbies can provide a great respite from tics. The workshop will be run by TS advocate and photographer Paul Stevenson, the children will not need cameras, just a phone or an ipad/tablet will suffice. During this workshop their will also be open discussion about TS.

ACKNOWLEDGMENT EVENING

To finish off what will be a fantastic day, we will be holding a party to celebrate our amazing community.

table magician and live band

TIC annual awards

7PM start bar till late.

COMMUNITY

On Sunday 12th June 10AM -2PM, We will be inviting people along to an Information Fair. The fair is a fantastic opportunity for gathering information around local services charities and groups which support those in the community with – Inclusion, Special Needs, Education, Disabilities, Mental health, physical health, Therapies, Support, Benefits and much more….

for more information please email – enquiries@tic-yorkshire.co.uk

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