THANK YOU FOR CHECKING IN - HERE IS WHAT YOU MAY NEED TO KNOW

What is Tourettes Syndrome

Tourettes Syndrome is a Neurological condition characterised by involuntary movements and sounds known as tics.

If you have followed the QR code on an individuals ID badge then you are likely witnessing a series of complex tics.

These tics may be physically debilitating, violent, dangerous or may result in what looks like a seizure.

If they are vocal tics they may include inappropriate language or appear to be in context with the situation around them, for example shouting "I have a bomb" whilst at the airport.

For many individuals living with Tourettes Syndrome they may also have additional complex conditions alongside.

These condition can include one or more of the following;

Autism Spectrum Disorder, Attention Deficit Hyperactivity Disorder (ADHD) Obsessive Compulsive Disorder (OCD) Sensory Difficulties,
Social Skills Deficit, Learning Disabilities, Sleep Difficulties, Anxiety, Depression, Oppositional Defiance Disorder, Rage attacks.

The list of co-existing conditions is much larger, these are only an example of the most common.

Individuals may struggle with queues, crowded places, supermarkets with bright lights, places with loud noises and being alone.

HOW TO HELP

Please approach individual and ask if there is anything you can help with, most individuals would rather answer direct questions than be stared at or ignored!

TICS CAUSING DISTRESS TO INDIVIDUAL

try to provide a calm area for the individual or offer help (i.e with shopping)
Reassure others that tics are involuntary.
Remove any objects that may cause harm.

TICS HAVE CAUSED INDIVIDUAL TO FALL TO THE GROUND

Some individuals have leg tics which may result in dropping to the ground, ensure
they are safe, wait a while to see if legs begin to work again. Ask if individual has use of a wheelchair.

PERSON PRESENTING WITH SEIZURE LIKE SYMPTOMS

Make sure they are in a safe position, individuals may hit out around them, hit themselves or others, make sure where possible they are protected from harm.

Limit sensory input where possible, consider lighting, noise and temperature.

If they are able to communicate, please ask before considering calling for an ambulance.

If the individual is alone and you are unable to find contact details for a relative please call 07449338515 we may hold these details.

(If you are a paramedic/ A&E doctor, please be aware that the brightness, noise and temperature of an A&E department may cause more distress and increase tics).