T.I.C. Neurodiversity Symposium - with focus on Tourettes Syndrome and ADHD

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Friday 23rd August

Friday 23rd August 9:45am- 11am then the second half at 11:30am-12:30am

We will be looking into what Tourettes Syndrome is, when it was first recognised and what areas of the brain are effected. We will discuss the idea of genetics and how to go about getting diagnosed.

In the second half we will look at how Tourettes can impact a child in the classroom, what support is available and what strategies' can be put in place to help the child thrive in education.

Friday 23rd August 1:30pm-2:30pm

In this talk Johnny Davidson (mbe) and Paul Stevenson will discuss Tourettes Syndrome from an adults perspective. Addressing adult onset, seeking a diagnosis and discussing some of the topics around barriers for adults.

Friday 23rd August 10-11:30am

Sarah McClory and Elaine Smurthwaite both Sensory Occupational Therapists who volunteer for Tourettes Scotland will be joining us to deliver a workshop on understanding the Sensory Ladder.
More details to follow.

Friday 23rd August 2:30pm-4pm (times may change)

Sarah Sharp MSc Tictock Therapy and Coaching Ltd
Understanding & Supporting someone with functional tics (part of the functional neurological disorder (FND) family)
A brief introduction into what functional tics are,
why are they different to organic tics?
Other functional symptoms
The increase since the pandemic
Predisposing, precipitating and perpetuating factors
How to support someone with functional symptom

Friday 23rd August 1:30pm-3:00pm (times may change)

Debbie Thomson works as a private psychotherapeutic counsellor in Hull. Debbie has lived experience of OCD and founded the local OCD support group - OCD SUPPORT. OCD SUPPORT provides support for anybody affected by OCD and welcomes people aged 16+ to their monthly group.

In her talk, Debbie will share some of her own experiences of OCD and compulsive tics and how these impacted on her mental health. Debbie will also offer insight into how she works therapeutically with OCD, leaving time for an opportunity to ask her any questions.

Friday 23rd August 2:30pm-3:30pm (times may change)

Dr Maddie Groom leads the 'ImproviNg Tic Services in EnglaND' (INTEND) study which is funded by the National Institute of Health Research (NIHR) to improve current service provision for children and young people with tics and Tourettes in England. We plan to assess current service pathways through Freedom of Information requests sent to Integrated Care Boards. We are also carrying out a survey of healthcare professionals working in children and young people's services to evaluate their experience of assessing and treating tics and whether they feel they would benefit from more training in this area. We will then work with experts throughout England to develop a recommended care pathway for the referral, assessment and treatment of tics. We will consult commissioners and transformation managers in a number of NHS Trusts in England to gather their feedback on these recommendations. We will then seek further funding to finalise the recommendations and accompanying guidelines and evaluate their implementation in clinical services.

Saturday 24th August

Saturday 24th August 10am-11am (times may change)

My name is Romy Worthington and I am a 21 year old living with Tourette's, OCD, and PANS. I am very passionate about disability advocacy and love to raise awareness. I will be discussing PANDAS and PANS - with a focus on how the conditions present, how they are diagnosed, and how they can overlap with Tourette Syndrome. This topic is so important as PANDAS/PANS is managed differently to Tourette Syndrome, so the correct diagnosis is needed. It is also possible to have both TS and PANDAS, which can exacerbate the severity of an individuals tics and co-occurring conditions as PANDAS/PANS can lead to tics, OCD, rages, sensory processing issues, and more. This discussion will help people understand the conditions and feel confident seeking an assessment if they feel it could be helpful.

Saturday 24th August 9:45am - 10:45am a short break then back for the second part at 11:15am-12pm

Our ADHD lead Yas Bartle will be delving into what ADHD is, when it was first identified and what the characteristic are.
In the second half she will discuss how the condition can present in a child and the impact this may have in the classroom enviroment.

Saturday 24th 1:15pm-2:15pm

Yas will be discussing in this talk the Attention Deficit Hyperactivity presentation in adults. How hormones play a big part and why many adults are misdiagnosed with other mental health conditions prior to receiving an accurate diagnosis. She will also give some advice on how to request referrals for an adult diagnosis.

Saturday 24th 10am-11am

Popular PDA/ASC speaker Tigger Pritchard will be talking about ARFID, if you haven't heard about this before, or you'd like to know more, we'll be exploring Avoidant Restrictive Food Intake Disorder, and what it means to Neurodivergent individuals and how to support individuals.

Saturday 11:30am-12:30pm

When our young people are struggling to sleep, it can feel overwhelming to know where to start with changes to make. We also tend to second guess ourselves due to social pressures. This workshop will begin by outlining our priorities of care so that you can feel more secure going forward with your decision making and support of your young person.

We will also look at common neurodivergent traits and how these are our foundation blocks to creating sleep support. Attendants will be encouraged to help answer the question ‘what should sleep look like?’ and ‘do ND kiddos have bedtime routines?’. Finally, we will discuss some of the most commonly reported sleep challenges and how our tailored support will address regulation and mental health needs.

Saturday 24th August 1:30pm-3pm

Understanding Autistic individuals - We'll be looking at up to date Neurodivergent led thinking, and my personal experiences of being Neurospicy. Looking at how to support Autistic individuals and suitable approaches to reduce our anxiety. Also addressing the crossover between Autism and TS.

Saturday 24th August 11:30am-12:30pm

A discussion around being LGBTQ and Neurodiverse

Speaker and details to follow soon

Saturday 24th August 11am-12pm (times may change)

We will be inviting a few individuals up to discuss there lived experience around diagnosis, misdiagnosis and in general life. Speakers to include Ravenna Dagger, Johnny Davidson (mbe) and Paul Stevenson.

Saturday 24th August 3:30pm-4:30pm

An exhibition of creativity will be on display over the 2 days, showcasing pieces of art from all areas (visual, dance, written word) which has been created from individuals within our community to explain what Tourettes Syndrome means to them. These pieces have come from children, adults, parents & siblings, and was created for Tourettes Awareness month.
Alongside the display there will be a presentation highlighting the reasons creativity is beneficial and some of the individuals who created the pieces will talk about the reasons behind their piece.