Ash Wells, age 19 years and 11 months

Early signs

I first noticed my tics when I was 13. Looking back, though, I can see I’d had them throughout childhood. The more I learn about Tourette’s, the more past memories make sense—finally with an explanation that fits.

School

School was a mix of good days and bad days, especially when my tics were more intense. I was fortunate to have supportive classmates and teachers who helped me feel understood and reassured.

My friends made a huge difference. We were often able to laugh and joke together about my tics—sometimes even in spite of them.

Diagnosis

I was 17 when I was diagnosed with Tourette’s syndrome through the NHS, after years of waiting lists and repeatedly pushing for referrals.

University: my biggest challenge (and proudest achievement)

My greatest challenge so far has been my first year at university. Balancing living independently, keeping up with my studies, and managing Tourette’s has been difficult at times.

There were moments when I thought I couldn’t do it, or I questioned why I wanted to put myself through it. But I’ve also enjoyed learning, making new memories with friends, and proving to myself that I can keep going. That’s why getting this far has become one of my proudest achievements.

Finding support: TIC

When I first noticed my tics, I started attending the weekly TIC groups. I was confused and scared about what was happening, and my mum suggested a support group to see if it could help.

It took me three weeks to agree to go. I did my own research, but I was still nervous because I didn’t know what to expect. For the first few weeks I sat quietly in the corner drawing and observing. Over time, I began talking to people—and I eventually joined the youth advocates.

I’m so glad I went. At TIC I found a community that accepts me for who I am. They’ve helped me grow in confidence and understand Tourette’s better. I also love volunteering whenever I’m back in town, and I can’t thank them enough for the support they’ve given me (and still do).

What I’d say to my younger self

• Don’t give up.
• There’s a huge community of people out there ready to meet you and get to know the real you.
• You can enjoy your life, even with the extra challenges.

A message to anyone reading

Tourette’s is not the end of the world. For me, it was the beginning of what turned out to be some of the best years of my life—surrounded by friends.